WHITEHALL, Mich. (WOOD) — Parents of a 7-year-old girl with a rare and terminal disorder are fighting a plan by a Muskegon County school district to remove her from the school she attends with her siblings and send her to a different school a 90-minute bus ride away.
All of Justina and Lance Bernhardt’s six children have attended Whitehall District Schools. Three of the children have special needs. Their adult son has cerebral palsy and lives with them. Their 11-year-old son and 7-year-old daughter Anna both have Sanfilippo syndrome.
Sanfilippo is a genetic condition in which the body does not produce the enzyme that breaks down certain forms of sugar, resulting in cellular damage and a buildup of toxins that damages the brain.
Full story: WOOD TV