Gabe's story: Life with a rare genetic disorder


HUDSONVILLE, Mich. (WOOD) — As they care for their 4-year-old son, who has a genetic disorder so rare that it doesn't even have a name, a West Michigan family is finding ways to bring the world to him.

"He's the love of my life. We just adore him," Gabriel Dehen's father David Dehen said.

Gabe's case is among fewer than 25 instances of the disorder ever being recorded anywhere in the world. Caused by an abnormality in what's called the PIGA gene, the terminal illness keeps Gabe from speaking or even moving, and continues to cause his brain and brain stem to degenerate.



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