(WOOD) — It’s a major milestone for a young Rockford girl and one her family thought would never happen: Thanks to a program at Helen DeVos Children’s Hospital, she has learned to eat.
Lexi Truax was born with a rare gene defect with which only 14 kids worldwide have been diagnosed. Until recently, she got the nutrition she needed to survive through a feeding tube.
“The kitchen is one of the biggest social places,” Sarah Truax, Lexi’s mother, said.
But for her family, mealtimes were one more thing 3-year-old daughter Lexi had to miss out on. Because of a gene defect, Lexi can’t see, walk, talk or eat like most people.
“She didn’t take anything by mouth,” Truax said.
That is, until they found the Intensive Feeding Program at Helen DeVos Children’s Hospital.
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